CYSTIC FIBROSIS FOUNDATION
MD · US
Tracked direct giving
$0
LDA reported lobbying spend
$1,950,000
Connections
6
Outside Spending and Dark Money
Dark money is election spending by organizations that do not disclose their donors: 501(c)(4) social welfare organizations, 501(c)(6) trade associations, and similar non-committee filers (FEC Form 5 and Form 9). Registered super PACs also make independent expenditures. But they itemize their donors with the FEC, so their spending is not dark money. Figures below are never combined with disclosed-donor totals.
IRS 990 Schedule I Grant Chain
Grants between nonprofits reported on IRS Form 990 Schedule I. Grants between organizations are one route for dark money. A nonprofit may receive a grant from one entity and then spend that money on election ads.
IRS 990 Schedule I grants received
$387,615
| Grantor | Amount | Tax Year | Purpose |
|---|---|---|---|
| AMERICAN GIFT FUND | $9,750 | 2024 | OPERATIONS |
| AMERICAN ENDOWMENT FOUNDATION | $377,865 | 2024 | DISEASE/DISORDER |
Source: IRS Form 990 Schedule I (Grants and Other Assistance to Organizations) via ProPublica Nonprofit Explorer and IRS 990 XML e-files. Grant amounts represent the most recent filing year available.
IRS 990 data lags a year or more behind filing. Grants shown are for the stated tax year and do not establish current-cycle funding.
Methodology Disclosure
Dark money figures are derived from FEC Form 5 (independent expenditures by non-committee organizations) and Form 9 (electioneering communications). These filings capture spending on ads and election communications but do not reveal the identity of the organization's donors. QPQ totals may differ from benchmarks like the Brennan Center's estimates. QPQ includes all Form 5 filers, while some benchmarks count only a subset of non-disclosing nonprofits. Grant chain data is from IRS Form 990 Schedule I and may not include all years or all grantee organizations.
Lobbying Activity Detail
Disclosed lobbying expenditures from LDA filings where this entity is the client. Dollar amounts represent what was reported to the Senate Office of Public Records.
Top Lobbying Issues
Lobbying Firms Retained
Bills Referenced in Lobbying Filings
Lobbying data from Senate LDA filings and the LobbyView dataset (MIT/NSF, CC-BY-4.0). Dollar figures represent disclosed expenditures only and may not capture all influence activity. Issue codes follow the LDA general issue classification.
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Relationships
| Type | Connected To | Details | Source |
|---|---|---|---|
| Retained | THORN RUN PARTNERS | Hired THORN RUN PARTNERS to lobby on PBM Reform Act | Source |
| Lobbied on | Pharmacy Benefit Manager Reform Act | LDA filing: lobbied on PBM Reform Act, period 1st Quarter (Jan 1 - Mar 31), reported amount $30,000 | Source |
| Lobbied on | Insulin Price Caps - State-Level Legislation | LDA filing: lobbied on Insulin Price Caps, period 1st Quarter (Jan 1 - Mar 31), reported amount $430,000 | Source |
| Retained | TURNER & GOSS LLP | Hired TURNER & GOSS LLP to lobby (1st Quarter (Jan 1 - Mar 31) 2023) | Source |
| Received money from | AMERICAN GIFT FUND | IRS 990 Schedule I grant of $9,750 (tax year 2024). Purpose: OPERATIONS | Source |
| Received money from | AMERICAN ENDOWMENT FOUNDATION | IRS 990 Schedule I grant of $377,865 (tax year 2024). Purpose: DISEASE/DISORDER | Source |